Kansas City, KS- Jim Gordon was diagnosed with cutaneous T-cell lymphoma (CTCL) in 2016 and became one of the rare CTCL patients who need a bone marrow transplant. His younger brother, Dan, was a perfect match.

Dr. Abhyankar explained how CTCL often progresses on covered skin areas, while Ellen Klostermeyer highlighted the importance of strict isolation during recovery.

Jim’s story shows the power of expert care, strong support, and perseverance in facing a challenging and uncommon form of lymphoma.

Jim Gordon, patient

• Jim initially thought his skin condition was a rash or sunburn, but it was actually CTCL, which starts in the skin and can require multiple treatment paths.
• He began UV light therapy and later moved to photopheresis, a treatment where blood is treated with light and returned to the body. He eventually needed a transplant.
• Jim reflects on his recovery, feeling more energy and less pain compared to before the transplant.

Dr. Sunil Abhyankar, Hematologist and Transplant Specialist, The University of Kansas Cancer Center

• Dr. Abhyankar explains the rarity of CTCL progressing to the point of needing a transplant and the importance of having a suitable donor.
• Dr. Abhyankar discusses the symptoms of CTCL, including persistent rashes, raised lumps, and severe itching.

Ellen Klostermeyer, Post Transplant Nurse, The University of Kansas Cancer Center

• Photopheresis is a common bridge therapy before a transplant, using UV light to treat lymphoma cells in the blood.
• Ellen explains the challenges of isolation post-transplant and the importance of having a caregiver.

Monday, December 2nd is All Things Brain Health:

Relearning Life After Traumatic Brain Injury: James McGinnis’ Remarkable Return

A high school tackle nearly ended James McGinnis’ life in 2014.

Given less than a seven percent chance of survival, he relearned every basic skill and built a new life grounded in determination, family support, and expert rehabilitation.

Join us tomorrow as he shares his medical triumphs.

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